Katie’s Neuro Follow Up 2014 edition

Every year around this time, Katie goes to see “her Dr. T” to see how she’s doing and how she’s progressing. There were a few phone calls back and forth to set up this visit because no one was sure what Dr. T actually wanted to do this year. He decided that he would check her head and then decide, so we made the appointment in November and then waited patiently for the end of January. Her appointment was Tuesday.

On Sunday Katie lost her second tooth in five days, so she asked the tooth fairy to leave her tooth so that Dr. T could see it. Tooth, being a gracious soul, left it for her to show him. On Monday, Katie made a list of things that she wants to do that her father and I cannot agree on (Dr. T has graciously served as mediator as Katie has been growing and wanting to explore more and more things). This year, her list was written partially by her and partially by me (I wrote the letters she hasn’t quite gotten the hang of yet). This year’s list: riding a two-wheeled scooter; no training wheels, ride a horse, and downward dogs in yoga. I brought along some information on a class I’m interested in letting her take assuming she’s interested.

We were early for our appointment, which worked out well for us because Dr. T was running ahead too. I know, I know; doctors never do, but somehow, Dr. T is always on time and he is extremely forgiving when you get hung up somewhere in the hospital that isn’t as, um, efficient as he is. They did her height, weight, and head circumference. All normal stuff and as usual, Katie is near the bottom of the growth chart, but her head measures normal for her size. Praise God for that.

Katie was her happy, chatty self and completely enthusiastic about her visit. She was honest to God excited about seeing Dr. T. Given that she used to scream at the sight of his PA and was terrified of every person in scrubs she saw, this is amazing and awe inspiring. Dr. T came in and she was so happy to see him and he just goes with it. He got to feeling her head and he was pleased and not pleased. She now has bone everywhere but on the right side. We are rapidly approaching a crossroad, and he did think for a minute before he decided that was going to give her one more year to grow the bone on the right side. He didn’t think she could grow the bone she has so far, so we will continue to pray that God will make those little bones grow and she will get to do all the things on her list.

He did say, you could just use your common sense. I said, yes, well, one of us (pointing at P) wants to wrap her in bubble wrap; the other one of us wants ┬áto let her try things within reason. He said, do you say no? I said, sure, I’ve said no to acro (which her hero Bri does and she wants to try), and he said, okay, so we’re going to let Mom decide for the next year when Dad wants to reach for the bubble wrap, mom has the deciding vote. He also said that next year we will have to move if she hasn’t grown the bone. This is a faith journey — big time. She is a permanent resident of the prayer list at our church and I would respectfully ask that if your church or religious group has a prayer chain or prayer list, please add her to the list. God can do big things and I’m praying that He will do one more big thing for Katie. If He doesn’t, then I believe it means that this blog is serving a larger purpose.

Sitting in my closet right now is a two-wheeled scooter (pink and purple with Tinkerbell on it). She has asked twice already when she’s going to get her scooter, and that will likely happen tomorrow. So we will watch, wait, and pray.

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3 thoughts on “Katie’s Neuro Follow Up 2014 edition

  1. Even though I’m struggling to find a feed reader I like, and I’m always falling behind on everyone’s blogs. You and your family are always in my prayers.

  2. Oh, and I totally understand the desire for bubble wrap. I struggle with that here almost daily. It’s instinct and very hard to suppress.

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