people who follow me on Twitter know that Katie had her big evaluation appointment for the year today. I was a nervous wreck, big surprise. She was fine. She was able to look at the fish and talk about them and all that. In what I consider one of the all time smart moves by [...]
Posts Tagged ‘trigonocephaly’
Where she is now . . .
Posted in Uncategorized, tagged homeschool, Katie, trigonocephaly on February 23, 2011 | 2 Comments »
Things Mothers Don’t Talk About — But Should
Posted in Uncategorized, tagged Ben, health, Katie, trigonocephaly on February 21, 2011 | 3 Comments »
One thing I never really heard anyone talk about before I had either of my kids was a less than ideal “bonding” experience with the baby. My relationship with Ben was rock solid from day one. I adored him. He was beautiful and perfect in every way. We felt connected and to this day feel [...]
A Bit of Rambling
Posted in Uncategorized, tagged Ben, books, homeschool, Katie, trigonocephaly on January 25, 2011 | 3 Comments »
I’m probably about to be in for a shit-storm because I’ve gotten sucked into an abortion thing on Twitter. Sigh. I stand with HRC on this one. We need to make this a society where abortion is a legal procedure that is rarely needed. To do that? Better education. Better access to birth control. Better [...]
An Open Letter to My Congressional Representative
Posted in Uncategorized, tagged hcr, Katie, trigonocephaly on January 24, 2011 | Leave a Comment »
Rep. Ross: I have a 2 year old daughter who would have a hell of fight on her hands to get insurance when she ages out of our policy if your attempt to repeal health care reform had passed. Could you look her in the face and tell her she doesn’t deserve health insurance because [...]
Out of Whack
Posted in Uncategorized, tagged anxiety, Family, Katie, trigonocephaly on October 18, 2010 | 8 Comments »
I’ve been feeling particularly emotionally fragile for the last week or so. I don’t know how to explain it except to say it feels like I’m inside of a hole, dirt is falling all around me, and I can’t get out. People reach in to try to help me, but I can’t seem to raise [...]
How is Katie?
Posted in Uncategorized, tagged Katie, trigonocephaly on September 29, 2010 | 3 Comments »
If I had a nickel for every person who asked me that? I’d be a pretty rich woman. The emphasis lands on different words depending on who is asking and what they know about her situation. It’s pretty obvious that something is up. She doesn’t go with us a lot of places. Ben and I [...]
Well, that sucked
Posted in Uncategorized, tagged Katie, texture aversion, trigonocephaly on April 7, 2010 | 2 Comments »
Giving Katie a bath has been a challenge from the beginning. She has never liked to be rubbed, hates lotion, and doesn’t like the towels or washcloths. Tonight was a whole new level of hell. Being washed wasn’t too bad, the hair washing was accepted if not loved. But when it came time to get [...]
Wordless Wednesday (The Katie Edition)
Posted in Uncategorized, tagged Katie, trigonocephaly, Wordless Wednesday on February 3, 2010 | 4 Comments »
Katie before: Katie after: (Note the book — definitely mine.)
Katie is Cleared for Landing
Posted in Uncategorized, tagged Katie, trigonocephaly on January 18, 2010 | Leave a Comment »
We had the last of Katie’s follow ups today. She got to see her neurosurgeon and his trusty PA. They looked her over, measured her head, and felt around a bit. She burst into tears when the PA tried to touch her, but no screaming. This is a massive improvement over her last follow-up where [...]
Katie Update
Posted in Family, tagged Katie, recovery, strabismus, trigonocephaly on December 31, 2009 | Leave a Comment »
Quickie update. Talked briefly with her pediatrician who is convinced that this is nothing to worry about. Perfectly normal. Logical spot for screws to have been placed. If the areas seem to be getting more pronounced, I should call her surgeon on Monday. But even from last night to today, I can see that they’re [...]
-
What I Talk About
-
The Vault
